You just got an adult autism diagnosis—now what?
By Connie Butera, Registered Psychotherapist (CRPO) — Newmarket, Ontario
Hi, I’m Connie (she/her), a neurodiversity-affirming therapist supporting autistic and otherwise neurodivergent adults and families. My practice centres dignity, consent, pacing, and practical supports—no “fixing,” no masking lessons. If you’re in York Region/Simcoe, you can book with me here: https://conniebutera.janeapp.com.
A quick note before you dive in
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Use this post when you’re ready. I’m publishing it so you (or a loved one) can return any time and take the next step at your own pace.
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In my practice, it’s very common for a child’s assessment to spark reflection in a parent—many adults realize they might also be neurodivergent and begin their own diagnostic journey.
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Still on the fence about pursuing a diagnosis? Skim what the journey can look like and decide if/when it’s right for you.
First: welcome. An autism diagnosis in adulthood can feel clarifying, emotional, and life-changing—all at once. Nothing “new” has appeared; you’ve got language for a lifelong neurotype. You are different, not less. 🫶
1) Take time to process
Expect waves—relief, validation, and sometimes grief for “what might have been.” Give yourself permission to pause and regulate before sprinting into logistics. Lean on trusted people and ND-affirming professionals.
I am here to help! If you’re in York Region/Simcoe and want to process at your own pace, I offer individual and family therapy that honours your sensory profile, energy, identity, and goals: https://conniebutera.janeapp.com.
2) Understand adult services & funding (Ontario/Canada)
Key financial supports to explore
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Disability Tax Credit (DTC)
If eligible, the DTC can reduce taxes owing. The CRA allows up to 10 years of retroactive adjustments—often important for late-identified adults and providing a nice lump sum in some cases to get your started on your journey.
• Claiming the DTC: https://www.canada.ca/en/revenue-agency/services/tax/individuals/segments/tax-credits-deductions-persons-disabilities/disability-tax-credit/claiming-dtc.html
• Disability-related information & changing past returns (T1-Adjustment): https://www.canada.ca/en/revenue-agency/services/forms-publications/publications/rc4064/disability-related-information.html
• DTC overview: https://www.canada.ca/en/revenue-agency/services/tax/individuals/segments/tax-credits-deductions-persons-disabilities.html -
Passport Program (Ontario, adults 18+)
Individualized funding for community participation, skill building, respite, and more.
• Program: https://www.ontario.ca/page/passport-program-adults-developmental-disability
• Guidelines: https://www.ontario.ca/page/passport-program-guidelines
• Regional hub (York/Simcoe gateway info via YSAN): https://ysanetwork.ca/ -
Private & extended benefits
Check your plan for psychotherapy, occupational therapy (OT), speech-language pathology (SLP), and behavioural consultation—all common in adult care plans.
• Federal overview of supports/services (plus employment resources): https://www.canada.ca/en/public-health/services/diseases/autism-spectrum-disorder-asd/supports-services.html
If you also support a child/youth (strategy ideas still helpful for adults/parents):
• My overview of autism funding for youth: https://conniebuteramacp.yolasite.com/Autism-Funding.php
3) Build your support map (local + online)
York Region & area (adult-friendly/community):
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Kerry’s Place Autism Services (Central Region – Newmarket HQ) — adult groups, coaching, employment supports.
• Main site: https://kerrysplace.org/
• Contact (address: 17345 Leslie St, Suite 200, Newmarket): https://kerrysplace.org/about-us/contact-kerrys-place/ -
Autism Ontario — Adults — province-wide adult programming, navigation and funding info.
• Programs & services: https://www.autismontario.com/programs-services/adults
• Adult funding page: https://www.autismontario.com/programs-services/adults/awards-and-funding/government-funding-adults -
Autism York (Adult Meet-Up Group) — community meetups for ages 18+: https://autismyork.org/adult-autism-meet-up-group/
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York Simcoe Autism Network (YSAN) — regional service hub and events: https://ysanetwork.ca/
Canada-wide resource libraries & navigation:
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AIDE Canada: https://aidecanada.ca/
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PHAC national supports directory: https://www.canada.ca/en/public-health/services/diseases/autism-spectrum-disorder-asd/supports-services.html
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211 (find local services by postal code): Canada: https://211.ca/ | Ontario: https://211ontario.ca/ | 211 Central: https://211central.ca/
More regional agencies I’ve compiled (skim for adult-applicable programs):
https://conniebuteramacp.yolasite.com/York-Region-Service-Agencies.php
4) Embrace your neurodivergence
This is a process of self-knowledge—sensory needs, social energy, executive-function supports, stimming, communication preferences, and environments where you thrive. Consider:
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Sensory-friendly routines/commutes and low-demand recovery days
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Body-double/virtual co-working for task initiation
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Assistive tech (visual timers, reminders, text-expansion, speech-to-text)
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Self-advocacy scripts for healthcare, work, school, and family
Therapy can centre burnout recovery, identity integration, relationships, accommodations, and values-based planning—not camouflaging. Local to Newmarket/York Region? Book with my ND-affirming practice: https://conniebutera.janeapp.com.
5) Workplace: disclosure & accommodations (Ontario)
You decide if/when/how to disclose. In Ontario, the Human Rights Code and AODA require employers and service providers to accommodate disability to the point of undue hardship; accommodations should be individualized and dignity-preserving.
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OHRC duty-to-accommodate (overview): https://www3.ohrc.on.ca/en/policy-ableism-and-discrimination-based-disability/8-duty-accommodate
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OHRC mental-health/addictions policy (duty to accommodate): https://www3.ohrc.on.ca/en/policy-preventing-discrimination-based-mental-health-disabilities-and-addictions/13-duty
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Accessible workplaces (AODA): https://www.ontario.ca/page/accessible-workplaces
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Accessibility compliance guide: https://www.ontario.ca/page/guide-accessibility-compliance-industry
6) A starter checklist (save/share)
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☐ Give yourself time to feel and name what’s coming up.
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☐ Read a short primer on adult autism (AIDE Canada): https://aidecanada.ca/
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☐ Confirm eligibility & apply for the DTC; consider retroactive adjustments once approved: https://www.canada.ca/en/revenue-agency/services/tax/individuals/segments/tax-credits-deductions-persons-disabilities/disability-tax-credit/claiming-dtc.html
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☐ If in Ontario, contact DSO to start the Passport funding process: https://www.ontario.ca/page/passport-program-adults-developmental-disability
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☐ Check your extended benefits for psychotherapy, OT, SLP, etc.: https://www.canada.ca/en/public-health/services/diseases/autism-spectrum-disorder-asd/supports-services.html
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☐ Join a peer group (Autism Ontario Adults: https://www.autismontario.com/programs-services/adults | Autism York Meet-Up: https://autismyork.org/adult-autism-meet-up-group/)
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☐ Book with an ND-affirming therapist (hi!): https://conniebutera.janeapp.com
In case of crisis
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9-8-8 Suicide Crisis Helpline (Canada) — call or text 9-8-8: https://988.ca/
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211 — local mental-health/crisis lines & social supports: https://211.ca/ and https://211ontario.ca/
If you’re in immediate danger, call 911.
What if I don’t have a diagnosis yet—how do I get one?
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Talk to your family doctor about your experiences and ask for a referral to a psychologist or psychiatrist for a formal adult autism evaluation.
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Plan for wait times. In Ontario, public pathways can involve lengthy waits (often many months; in some areas a year or more), so starting the conversation early helps.
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Consider private assessment if you have benefits or the means to pay (commonly $3,500+; varies by provider and scope). Private assessments are typically faster; ask about adult-specific tools, a feedback session, and a report suitable for accommodations/DTC.
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Not ready for an assessment? Therapy can still help with sensory strategies, burnout recovery, communication supports, and accommodations requests—diagnosis is not a prerequisite for support.
Final word
Your diagnosis doesn’t change who you are—it explains you. You deserve supports that honour your wiring, community that “gets it,” and a plan that’s paced for your nervous system. If you want help putting this together, my Newmarket practice is here for you and your family: https://conniebutera.janeapp.com.